Archive for August, 2008

Reply From Dillon……..

Dear Mr Thomas,
Thank you for your email. I understand the strength of feeling, amongst those who have renal cancer and those who care for them about the draft guidance we have issued for consultation. Many people are expressing similar views, individually and through patient support groups.
You refer to some things you say I have [...]

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My Letter To N.I.C.E……………………..

Andrew DillonChief ExecutiveNational Institute for health and Clinical ExcellenceMidCity Place71 High HolbornLondonWC1V 6NA
Dear Mr Dillon,
RE:Bevacizumab, sorafenib, sunitinib and temsirolimus for renal cell carcinoma
As a Kidney Cancer patient I write to you in reference to your draft report on 7th August that outlines your recommendation to not approve the drugs for Advanced Kidney Cancer i.e. Sutent, [...]

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Francis Rodino Band at the Ayelsbury Hobble on the Cobbles……..

What a great day it was, I woke up expecting it to be a wash out, but by about 12 noon the skies had cleared and I set-off for Aylesbury for the annual Hobble on the Cobbles. I spent a bit of time listening to a few acts before meeting up with Francis and [...]

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Reaching Out To The ACOR Crew…….

Folks,
I know this is a bit of a cheek, however nothing ventured nothing gained as they say.
As you’re probably aware in the UK we are struggling to get the 4 main RCC drugs (SUTENT, AVASTIN, TORISEL and NEXAVAR) made available on our supposed free National Health Service (NHS). The Government committee N.I.C.E (National [...]

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A Response to Paul Flynn MP…….

I thought it maybe worth publishing my response to Paul Flynn’s blog on the subject of N.I.C.E. although I admit I don’t agree with his views on the pharmaceutical companies I do at least appreciate that he is willing to engage in the subject, something my local MP (Claire Ward) was not prepared to [...]

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The Blame Shifters……….

N.I.C.E must be getting desperate now. The latest article (that’s 7 today) is trying to shift the blame onto the PCTs. Andrew Dillon (head of N.I.C.E) is saying that the PCTs need to be more consistent with their approach and take a common view as this has caused the confusion. I suspect that [...]

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N.I.C.E Say We’re Mean…………..

It’s hard to feel sorry for them, let’s face it they’ll probably all have private health cover and will never be left in a position where they have to go down on bended knee to beg for drugs to keep them alive, do I feel sorry for them, do I feel we’re being “mean”….. no. [...]

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‘Computer Says No” ….. (Going For Low Survival Rates)………

Who is this Prof Littlejohn person? and what gives him the right to suggest that patients are “High Profiling their cases in the media” to try an get the drugs they so desperately need to fight Kidney Cancer.
To date high profiling has pretty much been the only way to get the drugs, if you don’t [...]

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Not-N.I.C.E Decision …………..

As a non-political/apolitical type it’s not in my nature to form particularly strong opinions when it comes to government matters, however yet again our UK system is letting the population down. Unless they do something pretty radical and step in I fear we’re heading for a denationalised health system where it’s “every man or [...]

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Archive for August, 2008

Reply From Dillon……..

My Letter To N.I.C.E……………………..

Francis Rodino Band at the Ayelsbury Hobble on the Cobbles……..

Reaching Out To The ACOR Crew…….

A Response to Paul Flynn MP…….

The Blame Shifters……….

N.I.C.E Say We’re Mean…………..

‘Computer Says No” ….. (Going For Low Survival Rates)………

Not-N.I.C.E Decision …………..

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