http://fit-vibes.co.uk/WordPress Mon, 23 Feb 2009 10:53:31 +0000 http://backend.userland.com/rss092 en First off I have to say I was heartened by what Dave deBronkart has to say on this subject. It's made me think about why I initially setup KCR and what the motivation was for it. However, rather than go off on too big a tangent lets deal with ... http://fit-vibes.co.uk/WordPress/?p=174 As I cast my mind back to March 2007 after the nephrectomy I cant help remembering what was on my mind as I surfed round the internet; you know the thing, that mad sense that “there must be a miracle out there” that somebody is hiding under a rock.As you ... http://fit-vibes.co.uk/WordPress/?p=164 It’s been quite a while since I wrote my last blog, but to be frank there hasn’t been that much to shout  about, and with this wretched credit crunch my mind has been somewhat focused elsewhere.So whilst we’re all sitting here at work waiting to see if we have jobs ... http://fit-vibes.co.uk/WordPress/?p=162 I've managed to record the salient bit of the program today for those of you who missed it, clearly you can still get it on BBC iPlayer over the next week however I thought I'd take a recording anyway. Radio 4 Any Questions Sorry for some of the background noise, but the ... http://fit-vibes.co.uk/WordPress/?p=158 The debate has moved on, and yet again we see NICE using a new line of defence. They’ve clearly lost the clinical efficacy debate and that has been born out by ITV’s breakfast programme this morning and the numerous articles in the press this week (<a href="http://www.kidneycancerresource.com/index.php/Main_Page" target="_blank">check out ... http://fit-vibes.co.uk/WordPress/?p=155 The demonstration at the NICE HQ was a fantastic success, nobody can deny that. The back-pedalling from NICE since then bears testament to that and a great debt of thanks goes to those who made it happen.To make the announcement about the eye drug on the same day as ... http://fit-vibes.co.uk/WordPress/?p=138 Dear Mr Thomas,Thank you for your email. I understand the strength of feeling, amongst those who have renal cancer and those who care for them about the draft guidance we have issued for consultation. Many people are expressing similar views, individually and through patient support groups. You refer to some ... http://fit-vibes.co.uk/WordPress/?p=137 Andrew DillonChief ExecutiveNational Institute for health and Clinical ExcellenceMidCity Place71 High HolbornLondonWC1V 6NADear Mr Dillon,RE:Bevacizumab, sorafenib, sunitinib and temsirolimus for renal cell carcinomaAs a Kidney Cancer patient I write to you in reference to your draft report on 7th August that outlines your recommendation to not approve the drugs for ... http://fit-vibes.co.uk/WordPress/?p=136 What a great day it was, I woke up expecting it to be a wash out, but by about 12 noon the skies had cleared and I set-off for Aylesbury for the annual Hobble on the Cobbles. I spent a bit of time listening to a few acts before ... http://fit-vibes.co.uk/WordPress/?p=134 Folks, I know this is a bit of a cheek, however nothing ventured nothing gained as they say.As you’re probably aware in the UK we are struggling to get the 4 main RCC drugs (SUTENT, AVASTIN, TORISEL and NEXAVAR) made available on our supposed free National Health Service (NHS). ... http://fit-vibes.co.uk/WordPress/?p=133