Archive for the 'Kidney Cancer' Category

In Response To Medpedia: Who gets to say what info is reliable?

First off I have to say I was heartened by what Dave deBronkart has to say on this subject. It’s made me think about why I initially setup KCR and what the motivation was for it. However, rather than go off on too big a tangent lets deal with the main issue that I [...]

[ Back to top ]

The Battle Against Snake-Oil………….

As I cast my mind back to March 2007 after the nephrectomy I cant help remembering what was on my mind as I surfed round the internet; you know the thing, that mad sense that “there must be a miracle out there” that somebody is hiding under a rock.
As you look at how people find [...]

[ Back to top ]

A New Start to 2009 …….

It’s been quite a while since I wrote my last blog, but to be frank there hasn’t been that much to shout about, and with this wretched credit crunch my mind has been somewhat focused elsewhere.
So whilst we’re all sitting here at work waiting to see if we have jobs at the end of the [...]

[ Back to top ]

The Debate Hits Any Questions On Radio 4 Today………

I’ve managed to record the salient bit of the program today for those of you who missed it, clearly you can still get it on BBC iPlayer over the next week however I thought I’d take a recording anyway.
Radio 4 Any Questions
Sorry for some of the background noise, but the quality should be good
The action [...]

[ Back to top ]

A New Angle From NICE and Bureaucracy Gone Mad?….

The debate has moved on, and yet again we see NICE using a new line of defence. They’ve clearly lost the clinical efficacy debate and that has been born out by ITV’s breakfast programme this morning and the numerous articles in the press this week (<a href=”http://www.kidneycancerresource.com/index.php/Main_Page” target=”_blank”>check out the rolling news in KCR</a>). [...]

[ Back to top ]

Reply From Dillon……..

Dear Mr Thomas,
Thank you for your email. I understand the strength of feeling, amongst those who have renal cancer and those who care for them about the draft guidance we have issued for consultation. Many people are expressing similar views, individually and through patient support groups.
You refer to some things you say I have [...]

[ Back to top ]

The Blame Shifters……….

N.I.C.E must be getting desperate now. The latest article (that’s 7 today) is trying to shift the blame onto the PCTs. Andrew Dillon (head of N.I.C.E) is saying that the PCTs need to be more consistent with their approach and take a common view as this has caused the confusion. I suspect that [...]

[ Back to top ]

N.I.C.E Say We’re Mean…………..

It’s hard to feel sorry for them, let’s face it they’ll probably all have private health cover and will never be left in a position where they have to go down on bended knee to beg for drugs to keep them alive, do I feel sorry for them, do I feel we’re being “mean”….. no. [...]

[ Back to top ]

‘Computer Says No” ….. (Going For Low Survival Rates)………

Who is this Prof Littlejohn person? and what gives him the right to suggest that patients are “High Profiling their cases in the media” to try an get the drugs they so desperately need to fight Kidney Cancer.
To date high profiling has pretty much been the only way to get the drugs, if you don’t [...]

[ Back to top ]

Not-N.I.C.E Decision …………..

As a non-political/apolitical type it’s not in my nature to form particularly strong opinions when it comes to government matters, however yet again our UK system is letting the population down. Unless they do something pretty radical and step in I fear we’re heading for a denationalised health system where it’s “every man or [...]

[ Back to top ]

Subscribe/Tag

Categories

Archives

Archive for the 'Kidney Cancer' Category

In Response To Medpedia: Who gets to say what info is reliable?

The Battle Against Snake-Oil………….

A New Start to 2009 …….

The Debate Hits Any Questions On Radio 4 Today………

A New Angle From NICE and Bureaucracy Gone Mad?….

Reply From Dillon……..

The Blame Shifters……….

N.I.C.E Say We’re Mean…………..

‘Computer Says No” ….. (Going For Low Survival Rates)………

Not-N.I.C.E Decision …………..

Current Music

Recent Posts

Blogs I Read

Meta