Archive for the 'General' Category

After The N.I.C.E Demonstration ………..

The demonstration at the NICE HQ was a fantastic success, nobody can deny that. The back-pedalling from NICE since then bears testament to that and a great debt of thanks goes to those who made it happen.
To make the announcement about the eye drug on the same day as the demonstration shows just how [...]

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My Letter To N.I.C.E……………………..

Andrew DillonChief ExecutiveNational Institute for health and Clinical ExcellenceMidCity Place71 High HolbornLondonWC1V 6NA
Dear Mr Dillon,
RE:Bevacizumab, sorafenib, sunitinib and temsirolimus for renal cell carcinoma
As a Kidney Cancer patient I write to you in reference to your draft report on 7th August that outlines your recommendation to not approve the drugs for Advanced Kidney Cancer i.e. Sutent, [...]

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Reaching Out To The ACOR Crew…….

Folks,
I know this is a bit of a cheek, however nothing ventured nothing gained as they say.
As you’re probably aware in the UK we are struggling to get the 4 main RCC drugs (SUTENT, AVASTIN, TORISEL and NEXAVAR) made available on our supposed free National Health Service (NHS). The Government committee N.I.C.E (National [...]

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A Response to Paul Flynn MP…….

I thought it maybe worth publishing my response to Paul Flynn’s blog on the subject of N.I.C.E. although I admit I don’t agree with his views on the pharmaceutical companies I do at least appreciate that he is willing to engage in the subject, something my local MP (Claire Ward) was not prepared to [...]

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A Christmas Observation….

Well, it does make me laugh that as we get closer and closer to Christmas we all madly dash to meet one another at various bars dotted about the city. For instance, I’ve maybe been out in the evening about 6 or 7 times this year in total, however this week I’m out every night [...]

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Read, Mark, Learn and Inwardly Digest……

These were words my prep-school headmaster always used to with monotonous regularity….. well expect for “Thomas, see me in my study later!!”.
Anyway for the married amongst us I suggest you read this blog… carefully:
When the Warden Speaks, Do Not Expect Sympathy, Dummy…….
I read Dave’s posts regularly because he has this uncanny [...]

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Hi Honey I’m Home!!!…………………..

On a slighly lighter note ….. I thought this was good news!!
An article from the Cherry Creek News
I might even clock off early tonight

Sphere: Related Content

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Elderly parents of Kidney Cancer Patient forced to sell home…….

I (along with others) was on Radio 5 Live last night on a phone-in about an elderly couple who are being forced to sell their home to pay for the costs of Sutent for their son who has advanced stage Kidney Cancer. Their local PCT (the Northumberland Care Trust) have refused to pay for the [...]

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Busy Month for KCR……………

It’s been a busy month so far in Kidney Cancer Resource land and I’ve found that with the commitments of work and the fact that I’ve just got my music studio back up and running as well, that it’s tougher and tougher to actually write any blogs. Some may say that’s a good thing.

I’ve [...]

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The Big Chill ……(Part II)

Well that was fun. Much better than I’d expected. I whimped out of
putting my own tent up and hired a 4 berth one with inflatable air
beds…. much more comfortable and far less effort. Almost civilised,
but not quite.
This was my first ever festival so I had no idea
what to expect, but what I didn’t expect was [...]

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Archive for the 'General' Category

After The N.I.C.E Demonstration ………..

My Letter To N.I.C.E……………………..

Reaching Out To The ACOR Crew…….

A Response to Paul Flynn MP…….

A Christmas Observation….

Read, Mark, Learn and Inwardly Digest……

Hi Honey I’m Home!!!…………………..

Elderly parents of Kidney Cancer Patient forced to sell home…….

Busy Month for KCR……………

The Big Chill ……(Part II)

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